Got a surgery date

Following a lung function test, coupled with a PET / CT scan a couple of weeks back, its ‘a go’ for surgery on the 1st May!

I still can’t quite believe it’s all happening, and I continue to thank my lucky stars that not only did I come across Simon, but also that he is prepared to operate…. result!.

I am physically and mentally feeling really good and remain completely ready to go under the knife.

Unfortunately, due to the lack of lung function while I am running at the moment, I have decided with great regret to defer my London Marathon place until next year.

As well as the lung function / PET scan, I also had an endobronchial ultra-sound. Essentially it allows them to see the tumour itself to ultimately confirm what they are seeing on the scans.

Anyway as part of this, the chap that did it mentioned that the tumour appears to be almost completely obstructing part of the lung airways on the left side….he said that it is therefore probably no great surprise that I struggle a bit when running

I am hoping that if all goes well and Simon can take the tumour out without having to take a lung out, fingers crossed I will get my complete lung function back – that would be about the best outcome in my head. I can then set my sights on tackling the London Marathon next year with a half decent time hopefully😊!

Thank you so much everyone for your supportive words over the last few weeks – both Catherine and I really appreciate it.

Now, bring on the 1st May!!

Woohoo!

Can’t quite believe it, but for once I have some good news!. So, after meeting with the surgeon at Royal Brompton today he told me he can do it!!!.

Yes of course there are risks involved...it maybe that once he gets in there it becomes apparent that he can’t take it out. Also an outside chance that he may have to take a lung out. However these risks are relatively low and so in his view it’s definitely worth doing. That’s good enough for me!

He has also run a marathon which makes him ‘number 1 guy’ in my book 😀👍.

I will have a series of tests over the next 2 weeks and then see him again for the results. Assuming they are all fine, then surgery will be all booked in.

Happy days!

A glimmer of hope maybe 🤞

While I have been spending the past few weeks getting my head around the terminal diagnosis, the biggest challenge has been the feeling of not doing anything. Having spoken with a few contacts, I have come across a surgeon in London who apparently specialises in treating inoperable cases. Anyway, after speaking with Alice, she has arranged for me to be referred to him. We will meet this Friday at his clinic.

I am desperately trying to not pin too much hope on him being able to help. After all I am have already been told that given where the tumour is, it is too dangerous to operate. That’s said, you never know eh 😀.

A bout of ‘man flu’ knocked me around a bit recently, however other than that I am still feeling really strong. Running continues to be fairly tough as my breathing is now definitely been restricted by the tumour pushing on my airway....feels a bit like breathing through a straw. Can’t deny it’s very frustrating and also is a constant reminder that ‘it’s there’. I just about managed to get round the wokingham half marathon recently, although nothing to write home about time wise. Weather was lovely and it was fantastic to see Catherine and the boys handing out water to all us runners at the half way point (which goes right past home).

I am still in two minds about the London marathon. Undoubtedly it would mean a ‘run,walk,run’ event for me. I’ve always wanted to give every race I have entered my all and running the whole way is part of that. Sadly I think I have to accept that the days of being able to do that are over now. But heah that’s ok, I can deal with that as long as for the most part I am running.

I’ll give it another few weeks and then make a decision on whether I do or not...if not London, then certainly a major half marathon later in the year.

Catherine and I are continuing to book up lots of fun things to do in the diary with (and without sometimes!) the boys...lots and lots to look forward all part of ‘project memories’ 👍

New year update

Now being a few weeks on from the news I had always feared....that the cancer is back, and that this time it isn’t curable, I am definitely starting to come to terms with it now.

Yes of course I won’t lie as there have been moments when it hits home and I am reminded of what is to come....the fact that I won’t be around to see the boys grow up and develop into the wonderful men I’m sure they will become is a difficult thought to accept.....knowing I won’t grow old with my beautiful Catherine is also something I struggle with often in periods of reflection.

However, overwhelming I do still have an overriding feeling of living for today and making the very best of whats left for me.

I’ve seen Alice since I last posted pre-Xmas. We had a really honest conversation about how things may likely pan out. That’s something I have really appreciated as it’s really helped me internally get my head around how to plan the time I have left (work, time with the family etc). Whilst she has now told me that in her view “up to 3 years is probably more realistic” it hasn’t really changed anything about how I feel right now.

Yes, sure 3 is not 5, but then I could spend the rest of my time (however long that ends up actually being) agonising it and not just getting on with my life. I’ve therefore decided to internally draw a line under the whole ‘number of years’ bit and focus on the here and now.

Other than when I run, physically I feel exactly the same as I did last year. While that continues to be the case, then no problem👍

I’m due to see Alice in a week where I am expecting that we will discuss when a course of radiotherapy will start.

I’ve had to take a day or two off running recently due to a recurring injury...nothing major or that won’t be sorted soon I’m sure. I still have my sights set on the wokingham half marathon in Feb and then 🤞the big one in April (London marathon)!.

It feels difficult to reach out again to you all as I know many of you have already given so generously to my charity. I am also conscious that given how things may progress and that treatment may have started by April, I may not be able to run London.

All that said, if you would still like to donate I would be hugely appreciative!!. I always had in my mind a target of £20k and I am almost there!....just over £19k and counting. It would be great if you could help me get there!. Thank you very much! X

https://www.justgiving.com/fundraising/runthroughcancer

CT scan update

Not quite sure how to articulate this update as it’s never been a message I have ever been told since this ‘whole cancer thing’ started.

So today was the results of the latest CT scan. Unfortunately not something that Alice could really sugar coat. In a nutshell the cancer is back in the lung (left side and around the size of a walnut....a small one I think). This time though it’s not a curable situation. She feels that anything up to 5 years would be a good estimate for what I have. As always Alice explained things perfectly and essentially has explained that for the time being she will keep monitoring my bloods and when the time is right she will start treatment..it won’t be surgery but either radio or chemo (or a combination of both).

This is news that Catherine and I were obviously hoping wouldn’t ever come, however at the same time at least we now know where we stand now and from now on its ‘project building memories’.

Physically I feel fine and am still running as much as I can...albeit a lot slower as the scar tissue from the last lot of radiotherapy is holding me back a bit on the breathing front.

Since my last update, Bowel Cancer UK have been in touch and offered me a place at next years London marathon. I would love to think I could do it one last time and so will focus all my efforts into training and see how I feel come the new year...then at the end of January I’ll make a call on whether I think I can do it.

So for now whilst it’s not been ‘a great day’ in the Pearce household, I really do feel strong and know that with Catherine and the boys beside me, I’m not going anywhere anytime soon:-).

Catherine and I have always tried to manage things where the cancer fits around us and not the other way around. We feel no reason to change this way of thinking despite this set back.

So for the moment while it has no impact on
our life’s let’s crack on babe!. Love you 😘 xx

Been a while…..

With a good 6 months since I posted online, coupled with a recent CT scan, I thought I would drop a quick note out as a bit of an update....

Since the radiotherapy back in September last year I have been trying as best as I can to get myself back into shape with running taking the usual ‘centre stage’. Whilst I don’t ever think I will ever get quite back to the fitness I was ‘pre lung surgeries’, the fact that I can still get out there every day and do what I love to do makes such a difference.

Last week I had the result of the CT scan which Catherine and I had our fingers so tightly crossed for....anyway I am thrilled to say that for the first time in a long time it was ‘all clear’!. Whilst the bloods are showing a slightly higher CEA score than normal, this is nothing that Alice is too concerned about. The bottom line is that from a scan point of view there is no cancer insight...result!. So for now she is happy to leave me alone with a re-test again in October.

Physically and mentally I feel fantastic and with the continued support of friends and family I feel I ‘cant loose’!.

So for now it really is ‘onwards and upwards’...Health, Family, Happiness, Sun and England in the semi finals of the World Cup.....what more do you want eh!:-)

Come on England 🏴󠁧󠁢󠁥󠁮󠁧󠁿!

One month on

With the last round of treatment now behind me I have had a little time to reflect on things a bit....helped a lot by the fact that we have finally managed to get some family time away on holiday for the half term hols.

A very close friend of mine sadly passed away recently following a long and very difficult battle with cancer. My thoughts are constantly with his family as I can only imagine how difficult things must be....I am so thankful that I had the chance to get as close as I did to Alan in recent years. He was a family friend of Mum and Dad’s who up until a few years ago I had not spent a great of time with. Then...cancer brought us together....he was a man who I took so much inspiration from.....a true fighter who despite everything never ever stop smiling. Alan was someone who did things ‘old style’ and I was fortunate enough to get proper handwritten letters from (non of that email rubbish:-). I have kept every one of them and am so glad that I have them to look back on. One of them in particular I refer to when the going gets a bit tough. It was a letter he wrote to me when I had just come out of one of my surgeries. The letter was nothing but a series of jokes!...despite everything he never lost his sense of humour and for me this epitomised my dear friend. You will never ever be forgot Alan....thankyou for helping me to get through my own cancer journey with a smile!

I have managed to get a few runs in over the past few days with my calf injury finally easing up a bit (running on a hotel treadmill gym helps a lot...despite being a bit boring at least it ‘kind’ to your legs!).

I continue to feel really optimistic about the next scan coming up in a few weeks and remain convinced that the radiotherapy has ‘done the job’ and I can move on once again with my life. My lungs feel good and following a small dose of shingles which I had a couple of weeks ago (side effect from the treatment), I am as good as new!.

Race time!

A few weeks back in an attempt to keep a focus on the ‘end game’ with the latest round of radiotherapy treatment I entered myself into a local 10k race (this Sunday). I knew at the time that perhaps it may have been the case that I might not be feeling well enough to run it.

Anyway, pleased to say that this week (where I was warned that the side effects of treatment maybe more obvious) has been a really good one!. I feel great...a bit tired but no issues with the lung that has prevented me from running or working. The leg injury that has been lingering around for a while has eased off a bit and I’ve been able to get a few training runs in.

Another reminder for me that plenty of physical activity throughout and post treatment massively helps recovery time.

The appointment with Alice is now in the diary for the 13th Nov. This will be where we have a general catch up and she books me in for a scan to hopefully have confirmation that I am once again ‘cancer free’....I feel very confident I am...let’s wait and see:-).

In the meantime, with plenty of running and a family holiday to look forward to, its onwards and upwards!

All done!

So that’s it!....the latest treatment over.

I am thrilled to have been able to once again ‘make the treatment fit around me’ rather than the other way round. Having been able to continue working and running throughout the past 3 weeks of radiotherapy has been great and exactly what I had hoped for.

I am told that the side effects are likely to kick in more over the next 2 weeks as my body starts to recover and repair from the effects of this stronger round of radiotherapy.

In terms of how I am feeling right now.....all really good!!. Other than a little more tired nothing more to report:-). Once again I am sure that by keeping active and running throughout has really helped.

So in terms of next steps it will be back to see Alice in the next week or so for a catch up, followed by another series of scans in a couple of months to assess whether it’s worked and the cancer is gone (apparently it can take this long for the radio treatment to ‘do its job’ so scanning any earlier it not recommended).

Let’s see what the next 2 weeks of recovery brings....I remain very confident that it will be fine.

Half way point…nearly

With the 'half way' point just in front of me (this Wednesday), I thought I would drop a quick post out to give an update....in short everything is going really well:-). Other than being a little more tired and some very minor soreness on chest, everything is all good and I really can't complain. Whilst it's possible that the side effects may get a little more intense in the coming days / weeks, I have a good feeling that it will be ok.

The team in Oxford are such a welcoming bunch. Everything is so well organised and nothing has been too much trouble. They have even managed to fix my appointments around work (early or late in the day), which I have been really grateful for...all helping to keep things 'as normal' as possible. I am reminded each time I go in just how lucky I am to be treated this time round at a hospital with such a forward thinking attitude to cancer treatment.

I've managed to keep a limited amount of running up...the only reason for not being able to do what I would have ideally liked is due to a calf injury which I can't seam to shake off. A few more days rest up with some 'core strengthening work' instead and then hopefully the trainers will be back on again by the weekend.

With the motivation of knowing that keeping the lungs 'active' will help me get through the treatment, it continues to remind me that running will always be 'on my side'