Unfortunately the appointment with Alice today didn’t go quite as I’d hoped. Last week I had a CT scan following some recent fluctuations in my bloods. The upshot is that the chemo has now stopped working and the cancer is fighting back and grown a bit (albeit still slowly and also in the same area). The good news is that it isn’t showing up anywhere else at the moment.
After Catherine and I talked it through, she has explained that the best course of action right now is for me to take a break to not only try and get my body back to a ‘pre chemo’ state, but also for us to enjoy the summer off all treatment.
I will continue to have my bloods checked every few weeks and if there is a significant change then I will have another scan. Alice has talked about the the most likely course of action at that point will be to get me back on a different chemo regime in the hope that this has the effect of stabilising things once again. It will be Folfox chemo (the same as I had back in 2014). After this the final ‘attack plan’ will be to pin my hopes on potentially getting on a clinical trial at the Marsden in London. Right now there isn’t anything which would suit me, however with developments in cancer research improving all the time I remain hopeful🤞.
In some way it will be great to have some relief and recovery time from the 27 chemo cycles I have had over the last year and a bit, however at the same time it does feel odd moving to a position where I am now ‘not doing anything’ to fight it. Alice has quite rightly explained that to continue now with chemo would really serve no purpose other than to make me feel rougher and impact quality of life.
So for now it is a case of cracking on with the family memory making and continuing to try and keep as fit as I can with my daily running / cycling. I continue to be sure that staying active is helping me physically and I know for a fact that it is mentally.
I had a lovely call with the chemo nurses today to thank them for everything they have done for me over the past 13 months….I’ve even managed to convince 2 of them to run a half marathon in the spring next year!😀…I’ll be the first to donate to their charity page for sure👍